Organizing My CF Life
The chaos that surrounds a person’s life is incredible. Between relationships, work, hobbies, and happin...
Archive Tag:Cystic Fibrosis
Why I Stride
Did you know that it’s already March??? I can’t believe how fast Great Strides is coming up. There are only ...
New Orleans Fun!
One of my favorite activities in the whole world is traveling. Once I had my wake up call that my health was declining a...
Keeping busy!
These last couple of months have been full of activity. Between home improvement projects and the holidays, read what I'...
Cysters & Fibros: finding the right support
The one thing that has been drilled into my head the most growing up is that CFers can be very dangerous to each other....
Vertex: The Journey to Orkambi
I’m sure many people have been waiting to hear about what it was like being on the Vertex (Orkambi) drug trial. I ...
Road to Roo: Day 10-11
We have finally arrived upon the last two days of our Bonnaroo road trip! These were some fun-packed couple of days, too...
10 Reasons I love my port!
I got my port placed a little over a month ago and just got to put it into use for the first time. While I knew there we...
Journey to the Port
A month ago I made the decision to get a port. It was a long and difficult decision for myself to make for several reaso...
Stress & Cystic Fibrosis
I was writing about the last couple days of my Bonnaroo trip this last week, but I need to take a side step to talk abou...
Follow along with my life!