What is Cystic Fibrosis?
“Cystic fibrosis is a life-threatening, genetic disease that causes persistent lung infections and progressively limits the ability to breathe. In people with CF, a defective gene causes a thick, buildup of mucus in the lungs, pancreas and other organs. In the lungs, the mucus clogs the airways and traps bacteria leading to infections, extensive lung damage and eventually, respiratory failure. In the pancreas, the mucus prevents the release of digestive enzymes that allow the body to break down food and absorb vital nutrients.” — Cystic Fibrosis Foundation
My story
I was diagnosed with Cystic Fibrosis when I was just 6 weeks old. My life has been quite the journey, and I still have some living left in me. This blog started as an outlet for the struggles that I was facing. It quickly grew into a way for me to share what it is like to live life despite battling Cystic Fibrosis. I also strive to show other CFers and those affected by CF a positive and encouraging, yet realistic, lifestyle.
I am currently an active and ambitious 25 year-old. I hold a degree in Music Business from the University of Wisconsin – Oshkosh. I played saxophone as my primary instrument for my studies. After college I played my saxophone in the community band where I live, but had to give that up once my lungs were incapable of keeping up. However, I indulge in playing many other instruments (piano, bass, guitar, ukulele, etc..). I am practicing hard to rediscover my piano because it has always held a special place in my heart. I am currently fortunate enough with my health to be able to work full-time at a place that I love.
In my free time, I love to hang out with my friends, partner, family, and my favorite puppy. Traveling is a prime interest of mine, including having gone on road trips to music festivals for a few summers! There is nothing more exciting and fascinating than exploring the world around you.
I am an extremely outgoing and friendly person. The whole reason I started this blog was to get people educated about what it is like to live with Cystic Fibrosis, and to inspire people to live their life to the fullest. No matter who you are, please contact me if you have anything you want to say. Whether you are a parent with questions, a fellow CFer with experiences to share, or just a curious individual, I would love to connect with you!
