You’ve somehow found someone to walk through the life that is a cystic fibrosis life without scaring them off. Great! Now, how the heck do you go about planning a wedding that is fun, special, and undamaging to your health? This is a dilemma that I dealt with all summer. Now that I have survived the wedding and come out the other side healthy and happy, I want to share some wedding planning tips.
The Guilt of Being Sick
Guilt. It’s a feeling I’ve had to process a lot lately. It’s something we all deal with from time to tim...
Progression, Personality, and Perseverance
Cystic fibrosis has slowly, but surely, been creeping and nosing into parts of my life previously untouched. J...
How To Beat Brain Fog
As I sat down to write my column for this week, a massive wave of writer’s block hit me. This has been plagu...
Necessary Evils
The CF community is no stranger to the fact that medications that we put into our bodies, especially the power...
Future Planning?
My clinic used to hand out questionnaires at check-ins to see how patients were doing. I always chuckled to my...
Dear Cyster Video Letters
I know it’s been a little while since I have been active, but I do have a blog post updating you on the ...
Is This Going To Be Forever?
This past year I have battled with more fatigue than I have ever had to deal with before. I may complain here ...
Am I In Pain?
I was going to write a quick Instagram post on this feeling, but then I realized that it may be a little more ...
Follow along with my life!